BBC See Hear programme

February 11, 2010 at 8:58 pm | Posted in BBC See Hear | 7 Comments
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Well tomorrow is my final appointment with the Hospital before I (hopefully) get the go ahead for an operation to turn me in to Lee Majors!!  I think that’s how to spell his name!!  Any way………the Bionic Man to those who don’t know 🙂

Apparently the BBC have been following my Blog on the sly and a few weeks ago contacted me to see if I would be happy for them to feature my hearing loss story on their See Hear programme.  I was a bit shocked initially.  I mean,  my blog isn’t really that good compared to so many others I have come across and I don’t have much time to update it as often as I want to either.  Anyway, I agreed thinking it would just be a small bit about my blog and I wouldn’t have that much input!!  Ha ha, silly me!!

So far we have filmed at my gym, at my house and tomorrow they are coming to the hospital to film me after my appointment.  I am not looking forward to seeing me on the TV but as I have roped my girls in to it too it should be quite amusing!!

On a more serious not, if there had been a programme about 6 months ago that I could have seen that showed someone going through a similar time as me I would have found it very helpful.  So hopefully someone will find it useful and it may help them realise things do get easier and there is light at the end of the tunnel!!

On a less serious note……..I wonder how much I should charge the BBC??

Oh……..if you want a giggle at me and the family then check out the TV programme on BBC 2 10th March.  Dont know what time it will be on but you can check it all out on their own blog nearer the show date here http://www.bbc.co.uk/blogs/seehear/

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  1. Moxy, haven’t seen or spoken to you for ages – luckily distance just pushes me towards texting!

    Finding your blog facinating, just read the full thing having only found out about it 30mins ago. Just shows how little we catch up nowadays.

    All the best for the appointment today, look forward to that long-awaited catch-up soon.

  2. Cheers Matt for the message. It has been far to long! Just got back from hospital and all went well. I now have to wait a few months for an operation and then the hard work starts! Hope to catch up soon.
    All the best,
    Moxy

  3. Graham, I have just read your blog with great interest. Your life story bears striking similarites to my own and possibly I might be able to provide some further information, although there is as you well describe an incredilbe amount out there in the internet relating to others experiences and the frustration of “feeling your way ” in a new world where the majority of individuals have very limited understanding. Technology can be of immeasureable benefit, but there is still a need to try everything for oneself as different individuals obtain different benfefits.
    My story was of previuos excellent health , sudden mod/severe hearing loss after influenza 12 yrs ago in my R ear, with perfect hearing in my L . Then sudden loss in April 2009, presumed to have been due to a viral infection also. Steroids/antiviral therapy unhelpful. Residual hearing in r ear , improved slightly by an aid, but I was in the fortunate position of being assessed and considered for a CI early on which was undertaken in December . with switch on in January . The effect has been dramatic, as it tends to be in those with sudden loss of relatively recent onset.
    I would also recommend the charity “Hearing Concern Link ” ,which provides invaluable support to those adults with aquired profound hearing loss.
    Good luck ,
    Andrew.

    • Hi Andrew. Wow…….it does sound exactly like my story.
      I would be really interested in hearing what you mean as dramatic? What can you do now?
      Can you hear the TV? Maybe use the phone?
      What are you like in group situations?
      I am due an op in May/June time and have chosen the AB implant. Which one have you got?
      To be honest any improvement would be great to have but if I can have a dramatic result like you then I would be well chuffed. You have only been switched on a short time. Can you describe the switch on for me and how you are progressing too.
      Thanks for the message,

      Graham 🙂

      • Graham,
        You will obviously know that people all respond rather differently to the CI switch on, suffice to say that on the first day coming home in the car I could hear the radio , for the first time in 8 months. Voices had a mechanical android sort of quality initially for the first week and then started to become more natural.I could converse in the car , with my wife,without having to turn my head and lip read. I had further tuning after one week, and testing of my sentence recognition , which you will recognise as a BKB test, this had improved from 16 to 91% in the space of a week. I have found that I am beginning to understand the TV but find using the PC or laptop and iplayer much better with attached speakers.
        Music is still rather strange, but I understand that may take some time longer.
        The telephone is my current task, and I have been able to use the phone over last week , including my mobile, but voices can still sound rather distorted and artificial. Reading the blogs would suggest some can get by simply using the microphone in the CI whilst others need to use the T coil setting. It does not seem an absolute science.
        I have the Cochlear Freedom system, but hope for an upgrade to the Cochlear 5 .The switch on involves the tuning of each of the electrodes, first establishing a minimal threshold and then an upper “comfort” level. You will hear a beeping sound . Its a bit like a graphic equaliser and takes up approx 2 hours. There were two different programmes put into the processor in my instance, and I was advised to try both over the course of the following week , to determine which one I preferred
        The biggest improvement has been in the return of my self-confidence and ability to socialise, ie around a dining table and outside. Where one tended to withdraw from communication in the recent past, I feel as confident as I had done socially in the past.

        Regards,

        Andrew.

      • Hi Andrew. That information is very encouraging!! I really hope I can converse with my wife without turning to see her lips. It can be a bit dangerous in the car!! 🙂
        Tell me, do you still use the hearing aid in the other ear or is that now useless? I have been told to try both together.
        I find the social situations really tough and long to be able to join a converstion again!!
        Thanks again for your comments. They have given me real hope.
        Graham

  4. Graham,
    I am sure you will rapidly be able to converse in the car without turning your head. It is advised not to use a hearing aid in the non -implanted ear for 2-3 months to have the brain adjust to the new sounds.After that you may choose to have your hearing aid reprogrammed to wear in the other ear. It would seem that approx 50% of individuals choose to do this , sighting increased clarity when listening to music , closer to bilateral hearing with greater localisation of sounds. But you may have found , like me that you had become used to unilateral hearing over the last 10yrs , and are just pleased to have one “reasonable” ear back ! I havent made a decision about my aid as yet, but I have resisted throwing the rather expensive aid away quite so soon.
    Keep positive, there is some light, or should that be sound, at the end of this very quiet tunnel.

    Best wishes,
    Andrew.


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