My little wind problem!!

April 30, 2011 at 1:30 pm | Posted in Cochlear Implants, My Cochlear Implant choice, Speech | 2 Comments
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It’s almost a year since my switch on and about 7 months since my last post.

I have learnt to adapt to my CI very well but I still have problems in group or noisy situations.  One of the problems I have recently solved seems so simple I wonder if anyone else with a CI has done the same?  The problem is WIND!  It is a problem that all CI users have and it is really annoying if you are outside on a breezy or windy day having a chat and you are constantly interupted by this gush of wind which completely kills off anything you might hear at that point.

More recently I have been doing a lot of cycling to train for a charity bike ride.  I find the wind when cycling really annoying and actually can be a safety problem as traffic noise is harder to hear.

Well, not one to sit back and take it I have been doing some research and it appears there is nothing on the market for AB CI users to stop this wind problem.  I cant quite believe it and I am happy if anyone can correct me on this.  I have therefore found my own solution and I have been testing it out.  Not to be too smug……….but it works brilliantly!!

It’s called a ‘windjammer’ and is a little sponge microphone cover that you see people on TV using on their lapel or tie microphones.  I contacted a local manufacturer and asked for their advice.  After sending the a picture of my CI they were able to recommend their smallest ‘windjammer’ for me to try.  It cost me about £10 for 5 of them and they work brilliantly!!

Now this solution will only work with Advanced Bionics CI’s as they are the only ones with a mic in the ear.  You also have to be 100% in the ear mic or you will still get some wind noise from the aux mic on the top of the unit.

Problem solved!!! 🙂

Roll on the summer and BBQ’s and more wind!!!

Has it really been only 5 months??!

November 8, 2010 at 9:51 pm | Posted in BBC See Hear, Cochlear Implants, My Cochlear Implant choice | 10 Comments
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I’ve been telling people recently that I’ve been switched on for about 8 months or so!!  Is it really ony 5 months??!!

Since my last post I have braved the airports with my CI and managed a great family holiday understanding spanish waiters and african sunglasses and flashing lights salesmen (you know the ones………..sat on every footpath trying to flog you stuff!!)!!  I have discovered a new job though.  All I have to do is buy some crap, print some cards off saying I’m deaf, wander round to restaurants and leave said crap on tables along with deaf card and get people to buy said crap from me!!  🙂

The holiday was great and there were no problems with the airport scanners.  I just said I had a CI and they waved me through and gave me a manual search.  The plane was fine and with the CV medium setting I was able to converse quite well considering the noise.  I am also glad to say that there were no mishaps with dropping any CI’s in the sea this time.  🙂

Phone calls are now much easier amongst friends and family and it’s nice to know my folks can pick up the phone to have a chat rather than text or email

I did have a ‘moment’ last week when we were moving out bedroom around when I came across some note pads.  I opened them up and there were the written half of my conversations with Vicky when I first lost my hearing.  It’s 15 months now since that dreaded day and I must admit those notepads brought it all flooding back.  It’s still hard to believe that only 15 months ago I could hear normally (albeit with one ear).  Thank goodness for the CI though!!  I couldn’t imagine what my life would be like now without it.  No way I could hold conversations via notepad!!!  ‘Moment’ over 🙂

Onwards and upwards I say!  What’s new this week??  Oh yeah fireworks!!  Great noise!! They sound normal apart from the high pitched ones which tend to turn the CI off !!  I wanna hear them!!!

I also had a new client in the gym today and was chatting away when I asked her if my assistant had told her that I was deaf.  I got the impression that she didn’t believe me at first…………which is nice………..but I still like to explain that I will need to see faces  to understand fully what is being said.  Especially in the noisy gym.  Still,  she didn’t think I was deaf and we’d been talking for about 10 mins!! 🙂

Roll on the next 5 months!!! 🙂

PS………if you have read this far then you will be interested to know that my BBC update programme will be on the 1st December, BBC2, See Hear, 1pm.  Should be a laugh…………..I had to do some acting for this one!! 🙂

Deafness cure breakthrough as scientists create tiny ear hairs from stem cells

May 16, 2010 at 11:30 am | Posted in Cochlear Implants, Possible cure for nerve deafness | 4 Comments
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I found this article in the Daily Mail after I was recovering from my operation.  Rather apt I think on the day I turn Bionic this article is released holding even more hope for the deaf and hard of hearing in the not so distant future!!

‘A cure for deafness could be on the horizon after scientists created specialised ear cells in the lab.

Grown in their thousands, the delicate hairs could one day be transplanted into the inner ear, restoring hearing to millions.

The breakthrough comes after ten years of painstaking research.

It may also allow some balance disorders to be eased and aid the search for drugs to prevent people from becoming hard of hearing.

Age-related hearing loss affects half of Britons aged 60 and over and there is currently no way of holding it at bay.

Hearing aids amplify sounds but nothing can give sufferers back the hearing they once had.

In the latest research at Stanford University, California, scientists perfected turning stem cells – blank cells which can turn into other cell types – into the delicate hairs found in the inner ear. ones.

The linch-pin of hearing and balance, thousands of these hairs help convert sound vibrations into nerve impulses which are decoded by the brain.

Ageing, noise and general wear and tear make them wither away and, until now, there was no way of replacing them.

The hairs made in the lab from mice looked and acted like the real thing, the journal Cell reports.

Researcher Stefan Heller said: ‘We knew it was really working when we saw them in the electron microscope.

‘They looked more or less like they were taken out of the ear.’

If the same technique can be applied to human cells, within ten years it may be possible to transplant-the delicate hairs to restore hearing.

Using slivers of the patient’s skin as a source of the stem cells means that any hairs generated would be a perfect match for their body.

It also raises the tantalising possibility of creating drugs to coax the ear into growing more hair cells of its own accord.

Professor Heller said: ‘We could now test thousands of drugs in a dish. Within a decade or so, we could reap the benefits.’

Lead researcher Dr Kazuo Oshima said: ‘We’ve made hair-like cells in a Petri dish. This is an important step towards the development of future therapies.’

Dr Ralph Holme, of the Royal National Institute for Deaf People, said the news was ‘really exciting’.

RNID-funded researchers at Sheffield University have turned human stem cells into hair cells but these were not as much like the real thing as the U.S. ones.’

The future of Cochlear Implants……..

April 15, 2010 at 12:17 pm | Posted in Cochlear Implants | 4 Comments
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Read this aloud and your inner ear, by itself, will be carrying out at least the equivalent of a billion floating-point operations per second, about the workload of a typical game console. The inner ear together with the brain can distinguish sounds that have intensities ranging over 120 decibels, from the roar of a jet engine to the rustle of a leaf, and it can pick out one conversation from among dozens in a crowded room. It is a feat no artificial system comes close to matching.

But what’s truly amazing is the neural system’s efficiency. Consuming about 50 watts, that game console throws off enough heat to bake a cookie, whereas the inner ear uses just 14 microwatts and could run for 15 years on one AA battery. If engineers could borrow nature’s tricks, maybe they could build faster, better, and smaller devices that don’t literally burn holes in our pockets. The idea, called neuromorphic engineering, has been around for 20 years, and its first fruits are finally approaching the market.

The likely first application is bionics–the use of devices implanted into the nervous system to help the deaf, blind, paralyzed, and others. There are two reasons for this choice: the biological inspiration crosses over to the application, and the premium on energy efficiency is particularly important.

Bionic ears are a case in point. Today’s device, called a cochlear implant, consists of an implanted electrode array; a bulky, power-hungry digital-signal processor worn outside the ear; and a wireless link that conveys data and power to the implanted electrodes. In the near future, these devices will be fully implanted inside the body so that deaf people will be indistinguishable from everyone else in both appearance and, we hope, ability to hear. In the past year, a lab at the Massachusetts Institute of Technology has completed work on a bionic-ear processor that does the job of the digital-signal processor, is small enough to be implanted, and could run on a 2-gram battery needing a wireless recharge only every two weeks [see illustration, “Mimicking the Ear“]. As the best batteries currently available can be recharged about 1000 times, this device is the first to permit 30-year operation without surgery to replace the battery.

Neuromorphic engineering and, more generally, biologically inspired electronics are still in their infancy, but practitioners have already accomplished amazing things. These include the attempt to understand biological systems, such as the retina of the human eye and the sonar systems of bats, by modeling them in microchips. Some of the lessons learned have been turned to practical purposes–for instance, applying the principles of vision in the housefly to the control of robotic motion and designing radio-frequency spectrum analyzers that mimic the architecture of the human inner ear. Some devices now measure oxygen saturation in the blood with sensors and processors inspired by the photoreceptors in our eyes; others employ pattern-recognition circuits that rely on the mix of analog and digital features found in the brain.

One of biology’s big power-saving secrets is that it relies on the physics of special-purpose structures, such as ears and eyes, to do a lot of analog computing. Ears, for example, are complex structures that by their inherent physics alone perform filtering, frequency-spectrum analysis, and signal compression–all before the signals are transmitted to the brain. Many of the initial insights into biology’s computing efficiency originated with Carver Mead, professor emeritus at the California Institute of Technology, in Pasadena–the founding father of neuromorphic engineering.

But ears, eyes, and even individual brain cells also have a digital aspect. Brain cells, or neurons, can be viewed as special-purpose analog-to-digital converters. They recognize particular patterns of voltage inputs from other neurons, integrate these signals in an analog manner, and then output a digital-like signal, a voltage spike (1) or its absence (0). Output spikes from one neuron act as inputs to the next neuron. And this simple process, amplified and repeated by billions of interconnected neurons, leads to movement, hearing, thought, and everything else under our brain’s control.

Analog devices in the ear, such as the eardrum and the cochlea, process sound. The ear then digitizes the processed sound signal by encoding it as spikes of voltage that travel down the auditory nerve to the brain, which interprets the spikes to distinguish a jazz tune from an oncoming train or a whisper. Because the ear has already done a great deal of analog computation on the sound, the information it provides the brain is more compact and far better suited than raw sound to human tasks, such as understanding what a child is whispering in a crowded movie theater. This scheme of low-power analog processing followed by digitization is one of the most important lessons biology has to teach designers of electronics.

BBC See Hear programme

February 11, 2010 at 8:58 pm | Posted in BBC See Hear | 7 Comments
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Well tomorrow is my final appointment with the Hospital before I (hopefully) get the go ahead for an operation to turn me in to Lee Majors!!  I think that’s how to spell his name!!  Any way………the Bionic Man to those who don’t know 🙂

Apparently the BBC have been following my Blog on the sly and a few weeks ago contacted me to see if I would be happy for them to feature my hearing loss story on their See Hear programme.  I was a bit shocked initially.  I mean,  my blog isn’t really that good compared to so many others I have come across and I don’t have much time to update it as often as I want to either.  Anyway, I agreed thinking it would just be a small bit about my blog and I wouldn’t have that much input!!  Ha ha, silly me!!

So far we have filmed at my gym, at my house and tomorrow they are coming to the hospital to film me after my appointment.  I am not looking forward to seeing me on the TV but as I have roped my girls in to it too it should be quite amusing!!

On a more serious not, if there had been a programme about 6 months ago that I could have seen that showed someone going through a similar time as me I would have found it very helpful.  So hopefully someone will find it useful and it may help them realise things do get easier and there is light at the end of the tunnel!!

On a less serious note……..I wonder how much I should charge the BBC??

Oh……..if you want a giggle at me and the family then check out the TV programme on BBC 2 10th March.  Dont know what time it will be on but you can check it all out on their own blog nearer the show date here http://www.bbc.co.uk/blogs/seehear/

Tests for Cochlear Implant

February 3, 2010 at 9:12 pm | Posted in Cochlear Implants | 5 Comments
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Its been a while since my last post and this is purely down to a hectic couple of months!
 
Since my last post on CI’s I have had two more appointments for tests which are required as part of the CI process.  The first was my CT and MRI scans on my ears.  These are mainly to see how healthy my cochlear’s are.  If they are in poor condition i.e bone growth then it may reduce my chances of getting good results from the CI itself.  I dont know the results but I assume as I have been hearing most of my life that they should be in reasonable condition.
The second test I have had was last week and that was a ‘Balance test’.  This test was much more in depth and required me to do a few funny things.  I had images of standing on one leg and hopping up and down……………and for some of it I wasn’t far off.  First of all I had to stand with both feet together and close my eyes.  Easy peasy Open-mouthed.  Next I had to stand with one foot in front of the other, heel to toe, and again close my eyes.  This one I did ok with but its not easy.  You try it!!
Then I stepped into the world of one of my own clients!  Doing gym work I quite often get my clients to do silly things as part of their exercise routine and in this case I was asked to stand up with my arms stretched out in front and march on the spot for a minute with my eyes closed.  I felt a right plonker!  Any way when I opened my eyes I had turned slightly to the right……….but not much……..which is a good sign.  This test shows which side you are weakest on for balance.
After this I was sat on a bed with some amusing ski type goggles on and asked to follow a red dot with my eyes.  The goggles had cameras in so the Doctors could study my eye movement.  That was quite good fun Tongue out!  The next and final test wasn’t!  I had to lay down on my back in complete darkness and have hot and cool water pumped into one ear at a time for 20 seconds.  This had the strangest effect of making me go realy dizzy.  To the extent I thought I was going to fall off the bed!  Sick
Apparently that is a normal result so although it wasn’t enjoyable I’m glad it’s over and I’m now another step closer to my possible CI.
My next tests are next week and this is speech, language and phsycology tests.  I have no idea what to expect with this one.  I assume it is mainly for those who have been deaf for life and can’t speak well.  The phsycology bit is probably to do with my state of mind and my realistic expectations for the operation and following switch on.  I will up date you on this afterwards.
Then comes the big one.  I have my ‘FINAL DECISION’ appointment with my surgeon on the 12th Feb.  In this appointment I will find out the results of all my tests and be told if I can have the CI.  If I can then, with the surgeon, I will have to decide which side to operate on and which CI brand to go for!
One step at a time…….Smile

Graham’s Sudden Sensorineural Hearing Loss Journey

January 27, 2010 at 10:21 pm | Posted in Cochlear Implants | 3 Comments
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My story starts around 10 years ago (Its been so long I cant remember exactly) when I woke up one morning and I couldn’t hear out of either ear.  I had a slight cold and assumed it was wax or congestion so popped off to the chemist.  I wasn’t worried at first because I didn’t feel unwell and assumed a few drops in my ears would solve the problem.

One ear returned gradually over the day to its full capacity but the other one didn’t.

I went to my Dr’s and explained the situation and was told it was glue ear caused by my ‘slight cold’ and go away and keep pinching my nose and blow through my ears.  He assured me it would clear up eventually.  Well, I had no reason not to believe him so I went away happy in the knowledge that it would come back again.

6 months later after a few more visits to the Dr and being told the same story I pushed to see a specialist.

I had been managing with the one ear as well as possible.  It’s amazing how quickly you adjust to situations……..but more on that later!

I went for CT scans and MRI scans and was told that I had suffered nerve damage and it would never return.

Sounds a bit blunt but that is exactly what I was told.  No explanations, no cures, no help no nothing!!

Well, being only 26 years old and told that I was going to have to survive with one ear was at the time devastating.  I remember walking out of the Specialists office in tears.  I mean……….up to that point I had always assumed that my full hearing would always return.

Well, my life didn’t end there.  Yes life was different.  I couldn’t hear where sounds were coming from.  I had to position myself with everyone to my left (my good ear) in social situations so I could join in the conversations.  (For meals that generally meant sitting at the end of the table………..not so good as I always seemed to be presented with the bill at the end of the night!!). Confused

I became so well practiced in coping that when I met new friends they were always surprised to find out that I only had one good ear.

Fast forward 10 years……………….

April 2009……….We had my Sister and my Niece staying with us and due to lack of space my niece, Victoria, was to sleep on a bed on our bedroom floor.  I had a slight cold so decided to take some decongestant just in case a snored and woke her up.  Well, I woke up the next morning and couldn’t hear anything.  Total panic………….Oh no, what do I do?  Because of my history with my hearing loss before I had always been told to get straight over to A&E and get seen as soon as possible…………….so that’s what I did.  After being seen by assessor and having had great trouble communicating with him he went off to speak to the ENT consultant on duty.  The assessor came back and told me that the ENT consultant didn’t need to see me and that it was just congestion and to go home and wait till it improved!!  I was amazed!!  Even with my history of hearing loss the ENT consultant wouldn’t even see me to tell me themselves.  What ever I said wouldn’t change their mind and so I left feeling, well words couldn’t describe how I felt!!  I went home and got my sister to phone my Dr’s who saw me very quickly.  And you know what they did?  They called ENT and told them about me and I was promptly sent straight over back to were I had just been!!  Amazing!!  4 hrs wasted!!

Luckily, by the time I was seen I could feel my hearing starting to improve.  I had the day at hospital doing hearing tests etc and by the time I got home my hearing had returned to normal.  What a relief!  Maybe I shouldn’t have panicked so much I thought.  Maybe the original consultant was right.  Maybe.

July 2009……….I came down with a virus.  Not sure if it was swine flu but the symptoms matched so had a course of Tamiflu.  This did absolutely nothing.  After about two weeks I eventually started to feel better.  It was a Saturday night and I went to bed as normal.  I woke up with a cough in the middle of the night.  Assuming that was just the last of my virus getting out of me I got up to go downstairs.  (Our house is very noisy and I didn’t want to wake our youngest up, as she still wasn’t sleeping right through the night).  Anyway………as I was going down stairs I realised that I had lost a bit of hearing in my good ear.  Assuming it was a bit of congestion like I had been led to believe back in April 2009 I took a decongestant and went off to sleep on the sofa.  3 hours later I woke up and couldn’t hear anything!!  Now as this had happened earlier in the year to me and it returned over a period of 12 hours or so I didn’t panic.  I spent the day with the family waiting for my hearing to return but by 6pm that evening nothing had improved and I decided to go straight to hospital.

They put me straight on steroids, anti-virals and oxygen and kept me in hospital for a week doing all sorts of hearing tests and blood tests and more blood tests and more blood tests.  According to the Dr’s although I was feeling better from the virus I was still actually quite ill.  My BP was up, my resting heart rate was over 100bpm and my temperature was up around 39.

After a week in hospital it was becoming increasing clear to me that my hearing was not likely to return and I was going to live the rest of my life as a deafened adult.

My family’s life and mine had suddenly been turned upside down in an instant.  I had been given a hearing aid to boost what little hearing I had left but that only allowed me to hear voices close up and I could only understand what was being said if they talked slowly to me and I could see the lips too.

How was I going to cope?

How was my wife going to cope, especially with two young children to cope with?

How will I cope with never being able to hear my children’s voices?

How would it affect my marriage?

How would it affect my social life and friendships?

How was I going to continue my business when my main requirement was good communication skills?

How will I cope at home and work without being able to talk over the phone?

So many questions…………..and at the same time trying to cope with the emotion of actually being totally deaf!

I have no skills usually associated with deafness but I am learning slowly.

My lip reading with the little noise I get from my hearing aid has improved quite quickly and my hearing therapist believes that I have probably been lip reading a bit without knowing to help when I lost the hearing in just one ear.

My favourite programme at the moment is CBB’s Something Special.  Brilliant.  It teaches children and now me and my wife simple signing.  Now we can tell each other if we saw a Tiger or a Giraffe Open-mouthed

It took me a few weeks to come to terms with my deafness and I was getting used to the hearing aid and the noises that it produced when…………..roll on Monday 19th October 2009………I woke up and put my hearing aid in and I couldn’t hear anything other than a buzz when my wife spoke.  Was my hearing aid broken?  It didn’t seem to be.  This time I gave it 2 hrs to improve and promptly went over to hospital AGAIN!  Straight on to the steroids and anti-virals.  I don’t feel unwell and it has become rather tiresome all this dashing around to try and save what little hearing I do have left.

I had another hearing test and it showed another drop in hearing quality!!  As if it could get any worse!!  I have been sent home with a more powerful hearing aid and I am now trying to readjust to my hearing being even worse and more and more relying on lip reading alone.

I feel that this week could be a tough one…………more to follow.

Today is the 21st October 2009 and I am now off for a coffee!!!

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